Ebook Mommy, I Feel Funny! A Child's Experience with Epilepsy, by Danielle M. Rocheford
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Mommy, I Feel Funny! A Child's Experience with Epilepsy, by Danielle M. Rocheford
Ebook Mommy, I Feel Funny! A Child's Experience with Epilepsy, by Danielle M. Rocheford
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Review
"As the parents of an epileptic child, this book offers a window into our sons world. Through simple but thorough explanations, we learn what Nel experiences when she has a seizure, visits her doctor and has testing done. Every child with epilepsy and parent of a child with epilepsy should hear this story." -Rob and Lisa Moss, Founders, seizuretracker.com"A very reassuring story of what a child with epilepsy might face. There are so many potentially frightening experiences and misperceptions these are handled calmly and with a deep understanding of how the child perceives them." -Donald L. Schomer, M.D., Director, Laboratory of Clinical Neurophysiology, Chief, Comprehensive Epilepsy Program, Beth Israel Deaconess Medical Center, Professor, Neurology, Harvard Medical School, Past President, American Clinical Neurophysiology Society, Past President, American Academy of Clinical Neurophysiology Chairman, Board of Clinical Neurophysiology"A delightful and inspirational story about a girl who refuses to let epilepsy interfere with her life. It is a joyful and cherished resource for helping children understand epilepsy." -Dr. Warren D. Spinner, Neurology, Epilepsy, Neurophysiology, Clinical Assistant Instructor, Department of Neurology, Stony Brook University Medical Center"A powerful story of a courageous life. I appreciate the characterizations of the hospital tests in a way that calms fears and engages a childs silly-o-meter. Ms Rocheford is modeling for parents how to talk with their children about hospital visits, which makes the story appropriate for children and parents going through any medical exploration." -Rhonda Rosenheck, Founder, livingcourage.com"An emotional story that allows the reader to feel the courage and bravery of a young girl in pursuit of a better life against some difficult or challenging circumstances." -Jeffrey St. Laurent, Author, Being Fulfilled, BeingFulfilled.net
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From the Author
A portion of the proceeds from the sale of this book will be donated to charities which focus on improving the quality of life for children with epilepsy.
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Product details
Age Range: 8 - 12 years
Grade Level: 3 - 7
Paperback: 40 pages
Publisher: Green Swing, A Wyatt-MacKenzie Imprint (March 1, 2009)
Language: English
ISBN-10: 1932279539
ISBN-13: 978-1932279535
Product Dimensions:
8.5 x 0.1 x 8.5 inches
Shipping Weight: 4 ounces (View shipping rates and policies)
Average Customer Review:
4.8 out of 5 stars
26 customer reviews
Amazon Best Sellers Rank:
#252,272 in Books (See Top 100 in Books)
Purchasing this book was a great experience for me. My son was diagnosed this year with epilepsy, and he gets complex partial seizures. Most epilepsy books address grand mals along with the others, but I really did not want my son to worry about grand mals at this point. I didn't want to scare him with that possibility, especially since he also has Aspergers and tends to fixate on negative things. My son also says his head "feels funny" so this seemed like a book he could resonate with.I read the review about the monster, and was concerned, so I got online and found the author and emailed her questions. She immediately communicated back and sent me a photo of the pages to show me the monster and what it was like. She was very kind and helpful, and also told me that all the profits for the book is donated to epilepsy research and causes.I still wasn't sure about the monster, but then I just ordered the book, and when I am reading it to my son, I replace the word "scary" in the book with "silly"...so my son hears it as being a "silly monster" (which is what the picture looks like anyway, it looks like a Sesame Street monster). He did not show any anxiety about the monster at all, so that's great.He did not show a desire to have the book read to him again, but I think the epilepsy sort of confuses him, and sometimes he tends to avoid things he does not understand. But I'm glad we have it, because I think he will want to hear it again in the future. This book almost mirrors my son's experiences with seizures, and I'm so glad to have purchased it.I highly recommend buying this book, if for no other reason than the author is helpful and receptive and donates the proceeds. But even beyond that, if your child has complex partial seizures, this is the best book for that type of epilepsy.
I could not wait to read this book with my 4 year old daughter who was diagnosed with epilepsy last week, but was disappointed to find this book does feature a red monster and the girl in the story, Nel, describes a monster standing behind her, when she feels "funny". This was a very confusing concept to my daughter. Instead of concentrating on the rest of the story, she was more consumed with the monster, what he was going to do to the little girl and where he was hiding after. Before reading this book, my daughter had no recollection of what happened to her when she had her seizures and only remembers after the ambulance ride. Now, this space in her head has been filled with fears that her seizures have something to do with monsters. I struggled to console her and am so depressed that I may have done more harm than good by reading this story to her.I do commend the author for trying to write a book that children and families in this situation can relate to. The book is nicely illustrated. The parts about the EEG, MRI, doctor's visits and medication are explained well and there is happy ending. I have been purchasing products almost weekly from amazon for the past decade, and this is the first time that I have ever taken the time to write a review. I do understand that this book is about one little girl's experience, and everyone's experience is unique, but I just want to caution parents of very young children, who may still be very concrete thinkers, about this part of the book.
My daughter (8yo) is an epileptic with recent breakthrough seizures both partial and TC. This book related the events in terms she can understand and gave her words for her feelings. The book has enabled the team to assist her with the medication, balancing epilepsy with school and to realize she is not alone. I have recommended this book to others who have found the same benefit. This is her fourth "seizure" book with each book explaining more to her and being age appropriate.
This has really helped me and my daughter (age 2) talk about what is going on with her.. She still doesn't totally get it but it helps her, I think, feel like she someone else has been through all ye testing and uncertainty and has come out on the other side. Need more books like this to express this experience, especially as there are so many different ways epilepsy can manifest itself...
Great to share with kids to help explain feelings and differences.
I really like this book. It is so hard to reassure a child with seizures. My 8 year old grandson enjoyed the story. His only wish was that the character had been a boy.
Great to read. Even as a Mom it helped our family create a great conversation about how our son feels and how someone else went through it. I think it helped him be able to verbalize a little more and feel good knowing he is not alone.
I purchased this book for a friend and she said it was very helpful for her child so he didn't feel alone. He found comfort knowing he wasn't the only child with epilepsy. Written in words for children to understand.
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